Neuromuscular FAQs

Where can I find more information?

Below are some links which you may find useful: 

 

Conditions

Becker-MD

Bethlem-myopathy

Central-core-disease

Charcot-Marie-Tooth

Congenital-muscular-dystrophies

Congenital-myasthenic-syndromes

Congenital-myotonic-dystrophy

Duchenne-the-older-child

Duchenne-MD

Emery-Dreifuss-MD

FSHD

Inclusion-body-myositis (IBM)

List-of-medical-conditions

LGMD-general

Manifesting-carriers

McArdles-disease

MDC1A

Metabolic-conditions

Minicore-(multicore)-myopathy

Mitochondrial-myopathies

Mitochondrial-myopathies-(1)

Myasthenia-Gravis

Myopathy

Myotonias

Myotonic-dystrophy-Facts

Myotonic-Dystrophy

Myotubular-(centronuclear)-myopathy

Nemaline-(rod)-myopathies-(1)

OPMD-(1)

Periodic-paralyses

Polymiositis,-dermatomyositis,-sarcoid-myopathy

Rigid-spine-syndrome

Spinal-Muscular-Atrophy (SMA)

Ulrich-congenital-MD

 

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Management

Anaesthetics

Anaesthetics - Neuromuscular and mitochondrial disorders: what is relevant to the anaesthesiologist?

Behaviour-issues

Dehydration

Lets-talk-about-feelings

Gastronomy

Heart-check

Making-breathing-easier

Muscle-biopsies

Nutrition-and-feeding

Pressure-ulcers

Questions-about-ventilation

Spinal-surgeries

Steroids-and-DMD

Surgical-correction-of-scoliosis

 

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Links to websites

Action Duchenne

http://www.actionduchenne.org/

 

Association for Glycogen Storage Disease (UK)

http://www.agsd.org.uk/

 

Hope House

http://www.hopehouse.org.uk/home.html

 

Muscular Dystrophy UK

http://www.muscular-dystrophy.org/

 

Myotonic Dystrophy Support Group

http://www.myotonicdystrophysupportgroup.org/

 

Neuromuscular Centre Midlands

http://nmc-midlands.co.uk/

 

The Neuromuscular Centre, Winsford

http://www.nmcentre.com/

 

Spinal Muscular Atrophy Support UK (Formerly The Jennifer Trust)

http://www.smasupportuk.org.uk/

 

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Appointments

For information about appointments please call:

Rachel Steel, Pathway Co-ordinator

Tel: 01691 404486

 

Psychology Appointments

Dr Yvette Easthope-Mowatt, Clinical Psychologist 

Tel: 01691 404041

 

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